It is yet another frustrating day. I really don't know when we will be coming home. I am tired of the long commute, staying at the hospital for 14 hours a day, eating out all my meals, and everything else I have been doing for the last 3 months. At the end of this month, we will have been in the NICU for 4 months. This is going to be way longer than I thought. I know a mom who finally got to take her twins home (with home oxygen) after more than 5 months in the hospital... 5 MONTHS! I am afraid we following suit.
Emilia had two bad spells just now, at the end of the day. She was just fine all day long but around 11pm, she had an awful one and then again just before the midnight. So, there is... a spell-free day ruined at the end of the day. We need to start a new streak of spell-free days... Are we ever going to have a spell-free 7 day streak?
To me it seems unachievable.
I try to not to worry too much about the spell episodes. At the end of the day, there is nothing I can do about it and there is no point in directing all my energy to something that I have no control of. If she does have a spell, then I may rescue her but I should not be mad at Emilia for doing it. I need to just patiently wait until she grows out of it.
Emilia was born on May 31, 2011, at 25 weeks and 5 days in gestational age. She came home on October 21, 2011 after spending 143 days in the hospital. Today she's a thriving, happy baby who continues to amaze us every single day. This blog records the journey of our miracle baby.
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