Today we put Emilia in room air again without any breathing support. It has been about 6 hours. I am praying that she can leave the low flow behind for good.
Emilia was born on May 31, 2011, at 25 weeks and 5 days in gestational age. She came home on October 21, 2011 after spending 143 days in the hospital. Today she's a thriving, happy baby who continues to amaze us every single day. This blog records the journey of our miracle baby.
Friday, September 23, 2011
Off low flow again
Today we put Emilia in room air again without any breathing support. It has been about 6 hours. I am praying that she can leave the low flow behind for good.
Video
I wanted to upload a video to this blog a long time ago but the file size was too big. Why haven't I thought of using YouTube until now?
When can we come home...?
It is yet another frustrating day. I really don't know when we will be coming home. I am tired of the long commute, staying at the hospital for 14 hours a day, eating out all my meals, and everything else I have been doing for the last 3 months. At the end of this month, we will have been in the NICU for 4 months. This is going to be way longer than I thought. I know a mom who finally got to take her twins home (with home oxygen) after more than 5 months in the hospital... 5 MONTHS! I am afraid we following suit.
Emilia had two bad spells just now, at the end of the day. She was just fine all day long but around 11pm, she had an awful one and then again just before the midnight. So, there is... a spell-free day ruined at the end of the day. We need to start a new streak of spell-free days... Are we ever going to have a spell-free 7 day streak?
To me it seems unachievable.
I try to not to worry too much about the spell episodes. At the end of the day, there is nothing I can do about it and there is no point in directing all my energy to something that I have no control of. If she does have a spell, then I may rescue her but I should not be mad at Emilia for doing it. I need to just patiently wait until she grows out of it.
Emilia had two bad spells just now, at the end of the day. She was just fine all day long but around 11pm, she had an awful one and then again just before the midnight. So, there is... a spell-free day ruined at the end of the day. We need to start a new streak of spell-free days... Are we ever going to have a spell-free 7 day streak?
To me it seems unachievable.
I try to not to worry too much about the spell episodes. At the end of the day, there is nothing I can do about it and there is no point in directing all my energy to something that I have no control of. If she does have a spell, then I may rescue her but I should not be mad at Emilia for doing it. I need to just patiently wait until she grows out of it.
Thursday, September 22, 2011
constipation?
Emilia has not been able to poo on her own past several days.
We have inserted glycerin tips 4 times already so this time we decided to leave her wihout giving any stimulation but it's been more than 48 hours since the last poo. The last poo was not even hard or like pellets as I would expect from constipation.
I am worried there might be something wrong but all the docs and nurses say it's what babies do and she wil have her own pattern. She is so gassy too. Old man fart, actually. Loud and very very smelly. I could not have imagined this is how a baby girl would smell. Really stinky that I am embarrassed the nurses might think it was me who just polluted the air.
We have inserted glycerin tips 4 times already so this time we decided to leave her wihout giving any stimulation but it's been more than 48 hours since the last poo. The last poo was not even hard or like pellets as I would expect from constipation.
I am worried there might be something wrong but all the docs and nurses say it's what babies do and she wil have her own pattern. She is so gassy too. Old man fart, actually. Loud and very very smelly. I could not have imagined this is how a baby girl would smell. Really stinky that I am embarrassed the nurses might think it was me who just polluted the air.
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