For a month or so, we have been putting Emilia on oxygen only for the night sleeping time. I contacted Sick Kids to let them know (as they asked me to) and today they sent an oximeter to do an overnight room air oximetry test. So, since 7pm, Emilia has been on two monitors: one for the test and one for the regular alarm monitoring as the test oximeter does not beep. So far, she's been around 94-99% sPO2, with 1-2 seconds of 88 and 89 when she was first falling asleep.
I am hoping that at our next appointment, they will tell us that Emilia can be completely off oxygen. Until then, we are still advised to supply her with oxygen overnight and continue the pulse oximetry monitoring. Today is the first time Emilia is being off oxygen for a complete 24 hour period (albeit for a test).... I will post later on about how she does it tonight.
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